Online Communities for Cancer Support



Lunch with friends. And you DO NOT want the topic of conversation every single week to be YOUR cancer. And even if you wanted the world to rotate around YOU– because hello, let’s get real, most days your mortality is more important to you than your friend’s dishing of professional workplace dirt–often your friends try as they may, don’t always GET IT.

Who does get it? Someone who has been there. Someone who IS THERE RIGHT NOW.

Which is why a social community is such a great source of support, information and yes, FUN.

Some communities remain chat rooms and bulletin boards, while others have evolved into true multi-feature dynamic communities.

General Requisites for Most Social Communities:

  • Create a password
  • Submit your email address
  • Choose a user name-your name in the community
  • Decide how much or how little about yourself you want to share
  • Picture time-your smiling face or not

Stumbling along in the user community I’ve discovered a few things that are helpful.

Use an alternative email address for your community messages. It’s much easier and tidier to keep all facets of your world separate.

Do share about yourself. Chances are there is someone out there who does get you, right where you are in your journey. Cancer battlers have more things in common than you might think.

Visit often and comment. You are an important part of the community.

Put up a picture. It makes everything more personal. Or how about an avatar?

avatar.jpg

Places to get an avatar:

Yahoo Avatars

Meez

Many social communities also give you free, create your own blog options and/or create your own page options.

The best way to find your way around these communities is to just, (sorry) DO IT.

Wander around, make friends, invite friends and remember, when all else fails, try the HELP icon.

Great Online Communities for Cancer:

My Crazy Sexy Life, author Kris Carr’s site. I love this site and if you visit stop by and say hi to me.

My Planet Cancer. This site has so much going on you will keep going back to check it all out.

BreastCancer.org provides chat and bulletin board options.

Teens Living With Cancer, a project that keeps growing.

The Cancer Compass Message Boards cover many types of cancers.

OncoChat, cancer support on the internet.

The American Cancer Society’s virtual community is a vast network of many cancer topics.

Susan G.Komen For the Cure, Message Boards.

Facebook, a social utility connects groups of people. You must join first and then search for communities OR create your own.

Have an online community you’d like to share? A message board you’ve found helpful? Be sure to send a link in the comments and I’ll feature it in the Friday News.

A final word. This is the internet and you should always follow safe guidelines. There are posers out there.

For more information on safety on the internet: National Cyber Security Alliance.

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Comments

  1. Hmm, Ruth, I need more information. Will email you off the blog and maybe we can research it and do a post on the topic.

  2. Julie, thanks for coming by. You too can have your own avatar.
    And you are right, laughter is a good thing.

  3. Ruth Blodgett says:

    Miss Tina, I love your avatar. Very you. But, serious question here:

    A fellow churchgoer’s husband passed away with a cancer that was called ‘mini-cell’…

    What on earth does that mean? Is it, like… something?

    The doctors explained that the reason they couldn’t find things quickly was because the cancer didn’t show up as cancer on normal screens.

    I’m confused.

    Any info?

    And I LOVED your laughter therapy blog. It made me smile and confirmed what I already believe…

    A good attitude is your best line of defense with men and possible fatal disease.

    No correlation, I’m sure.

    Ruth

  4. Fun blog, and we can certainly use more fun when it comes to battling cancer! Thank you!

    And gosh, Tina, your Avatar DOES look just like you … only not as goodlooking! 🙂

  5. Scary, isn’t it? Thanks for stopping by, Mary.

  6. Thanks for all these Tina, I’ll pass these on to the teenage boy I know with Hodgkins Disease.
    Love the Avatar. She looks…like YOU.

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NOTE: The contents in this blog are for informational purposes only, and should not be construed as medical advice, diagnosis, treatment or a substitute for professional care. Always seek the advice of your physician or other qualified health professional before making changes to any existing treatment or program. Some of the information presented in this blog may already be out of date.
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